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- autismIn Disability FAQs2 December 2023That's awesome Thankyou so much everyone!! I'll give them a look and update :)0
- Memory ConditionIn Disability FAQs7 April 2024Hi. Sadly I can't relate to what you are going through, but maybe letting your friends know about your memory issues (if you feel comfortable) may help? Sorry I couldn't give better advice :(10
- mobility aids?In Disability FAQs1 February 2024First of all, you don't have to "qualify" to get a mobility aid, rather if you think it might help then you get one. Most people who are even considering mobility aids, especially young people, are past the point of needing them and should have gotten one earlier. Now to answer your questions: 1. Choosing a mobility aid is largely common sense just compare your needs with what the aid provides e.g. walking sticks and crutches provide support when walking and standing and something to lean on for balance; rollators and walkers do the same but also have a seat and wheelchairs allow you to get around without standing or walking. If you're unsure I'd usually recommend getting a walking stick first as they are by far the cheapest option. I get my sticks from this website: https://www.walkingsticks.co.uk/ 2. Unfortunately, I can't help you much here as my dad was pretty supportive but my general advice for convincing people about this is to compare what you can do now to what you could do with the aid. This might not work for you but it's worth a shot if you haven't already. 3. In my experience walking sticks and crutches can get in basically almost all places an able bodied person could. Wheeled mobility aids would be more difficult but you might be able to find workarounds especially since you're ambulatory and can stand/walk if necessary, I don't have experience with this yet though so I can't give any specific advice. 4. I have anxiety too and started using a walking stick at 16. I was scared out of my mind but it was one of the best decisions I ever made. The best advice is to just do it but if you don't want to dive in at the deep end try using the aid in public but not at school first as, in my experience, strangers are far less likely to comment and even if they do you don't have to see them again. As for feeling like a burden, that's a difficult one that I'm still working through myself, it seems to get better with time though, but using aids and taking care of yourself will actually make you less inconvenient to others, trust me.40
- Can it turn into a disability?In Disability FAQs14 January 2024yes they can class as dissabiltys10
- Tips for faintingIn Disability FAQs19 December 2023I don't know if you have this already, or if this is what you're looking for, but you could maybe get a lanyard with an ID card/ pins that let people know you have a fainting disorder or if your not comfortable with that there are subtler options. That might help take some of the stress off if you put instructions on the card of what to do if you faint for people to see so they wouldn't call an ambulance. But maybe something you could do to start out is have a trusted friend or family member who is aware of what's going on and how to help go out with you until your comfortable enough to go out on your own. Or maybe even have a plan in place for certain places. Would fidgets or headphones maybe help take away some of the stress? Praying for you!40
- autismIn Disability FAQs4 December 2023Hi!! I was recently diagnosed with Autism! I would like to know more about it since I'm still new to the community and managing it! I've delt with sensory overload my whole life and when I found out about what I'd been experiencing, it was a moment of revelation that made my whole life make sense!10
- POTS Chat!!In Chronic Illness Club1 December 2023Ok thesesmight help my friend thank you0
- ME/CFS or Long Covid-GangIn Chronic Illness Club4 December 2023My mum has long covid and uses sinus rinse twice a day and find it realy helps hope it dose for you00
- ME/CFS or Long Covid-GangIn Chronic Illness Club7 February 2024I've had long covid cough for over a year now. Nothing has helped, unfortunately. The only thing that had any kind of positive effect was the first laryngeal nerve block injection, which had me nearly cough free for about 10 days. Then it ramped back up. A second nerve block injection on the other side was ineffective, as was a double shot, one on either side of my neck at the same time. I don't know if you have the cough, maybe suggest to your doctor a laryngeal nerve block injection. It might work for you, hard to say. Good luck, and hopefully one day we'll ditch this gang! 😁00
- POTS Chat!!In Chronic Illness Club4 December 2023Hi! Thank you so much for the tips!! I'll try drinking more water and increasing my salt intake and see if that helps! I've never heard the 'Mental Health directly impacts Physical Health' so I'll try taking better care of my mental state and see if that helps!! tysm!0
- EDS royalty??? 😎🎉🦓🦓🦓In Chronic Illness Club21 June 2024I have chronic pain and a lot of hyper mobility, my GP and physical therapist both think I might have EDS, they want me to do a genetic test, but how else do they scan for it? I'm also looking at getting a mobility aid, because the pain and locking of my joints has made it hard to move and I've missed a lot of school, so if anyone has advice on that too, it would be very welcome.00
- Possible POTS questionsIn Chronic Illness Club24 July 2024My doctor and cardiologist have told me I have POTS, but I'm not sure if it's officially on my medical papers. I'm going back to the cardiologist soon, so I will see.0
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